Crossing Over: Narratives of Palliative Care, Revised Edition
暫譯: 跨越：緩和醫療的敘事，修訂版

Barnard, David, Towers, Anna, Boston, Patricia

Crossing Over: Narratives of Palliative Care, Revised Edition
  • 出版商: Oxford University
  • 出版日期: 2022-12-02
  • 售價: $3,260
  • 貴賓價: 9.5 折 $3,097
  • 語言: 英文
  • 頁數: 512
  • 裝訂: Quality Paper - also called trade paper
  • ISBN: 0197602274
  • ISBN-13: 9780197602270

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商品描述

Crossing Over provides a unique view of patients, families, and their caregivers in the face of incurable illness. Twenty richly-detailed narratives bring vividly to life the experiences of dying and bereavement, weaving together emotions, physical symptoms, spiritual concerns, and the stresses of family life, as well as the professional and personal challenges of providing hospice and palliative care. Drawing on a variety of qualitative research methods, including participant-observation, interviews, and journal keeping, the narratives depict the sights, sounds, tastes, and smells of daily life in patients' homes and in the palliative care unit. Crossing Over moves far beyond conventional case reports in medicine, which typically concentrate narrowly on symptoms and treatments, and beyond clichÃ(c)s about "dying with dignity." It provides intimate views of the anger and fear, tenderness and reconciliation, jealousy and love, unexpected courage and unshakable faith, social support and "falling through the cracks," which are all part of facing death in North American society. It provides an extraordinary portrait of the processes of giving and receiving hospice and palliative care in the real world, as opposed to idealized versions in many textbooks.

This edition of Crossing Over has been thoroughly revised and updated to reflect changes in hospice and palliative care and in North American society since the first edition in 2000. Chief among these are the expansion of hospice and palliative care as a field, the ravages of the COVID-19 pandemic, the wider availability of medical aid in dying, and a heightened awareness of how structural racism, classism, and other forms of discrimination shape individuals' and families' experiences right up to the close of life.

商品描述(中文翻譯)

《跨越》提供了一個獨特的視角，展現患者、家庭及其照顧者在面對無法治癒的疾病時的情況。二十個豐富細緻的敘述生動地描繪了臨終和哀悼的經歷，交織著情感、身體症狀、精神關懷以及家庭生活的壓力，還有提供安寧緩和醫療的專業和個人挑戰。這些敘述運用了多種質性研究方法，包括參與觀察、訪談和日記記錄，描繪了患者家中及安寧緩和病房的日常生活中的視覺、聽覺、味覺和嗅覺。《跨越》遠遠超越了傳統醫學案例報告，這些報告通常狹隘地集中於症狀和治療，並且超越了關於「有尊嚴地面對死亡」的陳腔濫調。它提供了對於憤怒與恐懼、溫柔與和解、嫉妒與愛、意想不到的勇氣與堅定的信念、社會支持與「被忽視」的親密視角，這些都是在北美社會面對死亡的一部分。它提供了一幅非凡的肖像，描繪了在現實世界中給予和接受安寧緩和醫療的過程，而非許多教科書中理想化的版本。

本版《跨越》已全面修訂和更新，以反映自2000年第一版以來安寧緩和醫療及北美社會的變化。其中最重要的包括安寧緩和醫療作為一個領域的擴展、COVID-19疫情的破壞、醫療協助死亡的更廣泛可用性，以及對結構性種族主義、階級主義和其他形式歧視如何塑造個人和家庭在生命結束時經歷的更高認識。

作者簡介

David Barnard is an internationally recognized authority on the integration of the humanities in medical education and the humanistic aspects of end-of-life care. He retired as Professor of Medicine and Law at the University of Pittsburgh, the founding Director of the University of Pittsburgh Institute to Enhance Palliative Care, and Director of the Global Health and Human Rights Track at the School of Law. Previously, he was University Professor of Humanities and Chairman of the Department of Humanities at the Pennsylvania State University College of Medicine, the first Department of Humanities ever established at any medical school.

Anna Towers is Associate Professor in the Departments of Oncology and Family Medicine, McGill University, Montreal, and a palliative care physician at the McGill University Health Centre. She was Director of Palliative Care McGill from 1999-2009. In this position she helped create the first accredited residency in Palliative Medicine for Canada. She was Chair of the biennial International Congress on Palliative Care from 2004 to 2014. Her academic interests include ethical issues in palliative care, and, more recently, cancer-related lymphedema, an area in which she has received international recognition.

Patricia Boston is currently a clinical professor in The Department of Family Practice at The University of British Columbia. She was Director of the UBC Division of Palliative Care between 2003 - 2012 prior to which she was Associate Director of The McGill Programs in Whole Person Care. Patricia's research and teaching interests include: palliative care, grief and bereavement, psycho-social nursing issues and qualitative research methodologies.

Yanna Lambrinidou is a medical ethnographer, environmental justice activist, and affiliate faculty in the Department of Science, Technology, and Society at Virginia Tech. She served as the Smith College Lucille Geier Lakes Writer-in-Residence and the EPA National Drinking Water Advisory Council (NDWAC) Lead and Copper Rule (LCR) workgroup. She advised former Michigan Governor Rick Snyder's Flint Water Interagency Coordinating Committee (FWICC) and testified at the US House Democratic Steering and Policy Committee hearing on the Flint water crisis. Her ethnographic teaching module "Learning to Listen" was distinguished by the National Academy of Engineering (NAE) as an exemplary engineering ethics program.

作者簡介(中文翻譯)

大衛·巴納德 是國際公認的醫學教育中人文學科整合及臨終關懷人文面向的權威。他曾擔任匹茲堡大學醫學與法律教授、匹茲堡大學緩和醫療增進研究所的創始主任，以及法學院全球健康與人權專案的主任。之前，他是賓州州立大學醫學院人文學科的大學教授及人文學科系主任，該系是任何醫學院中首個成立的人文學科系。

安娜·陶爾斯 是麥吉爾大學腫瘤學與家庭醫學系的副教授，同時也是麥吉爾大學健康中心的緩和醫療醫師。她於1999年至2009年擔任麥吉爾緩和醫療中心主任。在此職位上，她協助創建了加拿大首個獲得認證的緩和醫學住院醫師計畫。她於2004年至2014年擔任雙年國際緩和醫療大會的主席。她的學術興趣包括緩和醫療中的倫理問題，以及最近的癌症相關淋巴水腫，這一領域使她獲得了國際認可。

帕特里夏·波士頓 目前是英屬哥倫比亞大學家庭醫學系的臨床教授。她曾於2003年至2012年擔任UBC緩和醫療部門主任，之前是麥吉爾全人關懷計畫的副主任。帕特里夏的研究和教學興趣包括：緩和醫療、悲傷與喪失、心理社會護理問題及質性研究方法。

雅娜·蘭布里尼杜 是一位醫學民族誌學家、環境正義活動家，並在維吉尼亞理工學院的科學、技術與社會系擔任附屬教員。她曾擔任史密斯學院露西爾·蓋爾·萊克斯作家駐校教授，以及美國環保署國家飲用水諮詢委員會（NDWAC）鉛與銅規則（LCR）工作組的負責人。她曾為前密西根州州長瑞克·斯奈德的弗林特水務跨機構協調委員會（FWICC）提供建議，並在美國眾議院民主黨指導與政策委員會就弗林特水危機進行的聽證會上作證。她的民族誌教學模組「學習傾聽」被美國國家工程院（NAE）評選為範例工程倫理計畫。

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